|
|
|
State
Legislation Highlight
In the month of November, the Florida state legislature
introduced a bill addressing genetic counseling (SB 44).
[top]
FDA
Issues Draft Guidance on Submission of Pharmacogenomic Data
“Draft Guidance for Industry: Pharmacogenomic Data Submissions”
provides recommendations and criteria for submission of
pharmacogenomic data, and specifies how the data will be used in
regulatory decision-making.
[top]
NHGRI
Launches Social and Behavioral Research Branch
The new branch will develop approaches to translating the
discoveries from the Human Genome Project into interventions for
health promotion and disease prevention, and for counseling
patients and families dealing with the impact of genetic
disorders.
[top]
HRSA
Looking for Grant Reviewers
The Health Resources and Services Administration is looking for
new and experienced grant reviewers with expertise in health
professions training, HIV/AIDS, maternal and child health, organ
transplantation, primary care for underserved people, and rural
health.
[top]
New
Website For Federal Grant Information
HHS Secretary Tommy Thompson has announced the creation of a
single, comprehensive Web site that will contain information
about finding and applying for all federal grant programs.
[top]
Children’s
Genetic Factors Determine HIV Progression
Researchers found that HIV positive children with certain
mutations in the gene CCR5 have a slower progression of the
disease and less neurocognitive impairment.
[top]
Researchers
Discover a Genetic Cause for Primary Iron Overload
Researchers have discovered a genetic mutation that increases
levels of a protein involved in iron storage and could be one
cause of primary iron overload disease.
[top]
Knowledge
and Educational Needs of Individuals with the Factor V Leiden
Mutation
Researchers found that knowledge of genetic status increases
awareness of thrombosis risk among patients, but the magnitude
of the risk is often overestimated.
[top]
Effect
of Expanded Newborn Screening on Child Outcomes and Parental
Stress
This study compares the identification of newborns with
biochemical disorders through newborn screening versus clinical
identification, and assesses the impact on families of false
positive and normal results in expanded newborn screening
programs.
[top]
Helpline
Offers One-to-One Talk on Cancer Risk
The helpline will offer women concerned about hereditary breast
and ovarian cancer the chance to talk with volunteers who have
undergone genetic counseling because of a family history of
those diseases.
[top]
Events
[top]
About
This Newsletter
[top]
|
